The filmmaker who chronicled Prince Frederik of Luxembourg’s battle with the rare genetic disorder PolG has shared her experience working with the royal, who passed away on Mar. 1 at 22. Commissioned by Frederik’s mother,

Prince Frederik of Luxembourg, who died at 22, spoke about the rare genetic disorder he navigated in a video released by The PolG Foundation he founded.

Prince Frederik, 22, was a founder and the creative director of a foundation that raised awareness of POLG disorder.