Understanding Metachromatic Leukodystrophy and Physiotherapy
2:45
Understanding Metachromatic Leukodystrophy and Physiotherapy
1.6K views2 months ago
TikTokaliamisbah00245
Metachromatic Leukodystrophy (MLD) is a rare, terminal disease that destroys the white matter in the brain. Three of my four children were diagnosed in 2017 with this genetic disease. Kay watches from above because diagnosis came too late for her. My two boys have gone through bone marrow transplants in hope to stall the destruction of white matter. You can see here, it’s not worked for my oldest son. He is still progressing 💔 #fmld #metachromaticleukodystrophy #onthisday
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Metachromatic Leukodystrophy (MLD) is a rare, terminal disease t…
647 views3 months ago
TikToksmilelikekay
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Family shares daughter’s story to raise awareness about rare disease
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wifr.com
And i did find a biotech willing to help!! Research to find a treatment is in the FINAL PHASE🙏🏼🩵🧬 #tbcd #geneticcondition #leukodystrophy #geneticcondition #onthisday
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And i did find a biotech willing to help!! Research to find a treatmen…
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