The BDSRA Annual Family Conference is a haven for our Batten disease community. It’s where lifelong bonds and friendships are formed and where crucial information is learned. Your gifts to the BDSRA Foundation make the Annual Family Conference possible, so Batten families like Mitch’s won’t be alone on their Batten journey. Join our Batten families in the fight for treatments and a cure for Batten disease: https://ow.ly/PfGS50XIE9H Mail checks to: BDSRA Foundation PO Box 30049 Gahanna, OH 43230
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The BDSRA Annual Family Conference is a haven for our Batten disease community. It’s where lifelong bonds and friendships are formed and where crucial information is learned. Your gifts to the BDSRA Foundation make the Annual Family Conference possible, so Batten families like Mitch’s won’t be alone on their Batten journey. Join our Batten families in the fight for treatments and a cure for Batten disease: https://ow.ly/PfGS50XIE9H Mail checks to: BDSRA Foundation PO Box 30049 Gahanna, OH 43230
1K views4 months ago
FacebookBDSRA Foundation
Batten Disease is a rare, fatal genetic disorder affecting children. The foundation that raises awareness for the condition is hosting its conference in Lincoln, which represents a big moment for local families like the Thoenes. Full Story: https://southeast.newschannelnebraska.com/story/52917213/bdsra-conference-takes-center-stage-in-lincoln | News Channel Nebraska
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Batten Disease is a rare, fatal genetic disorder affecting children. The foundation that raises awareness for the condition is hosting its conference in Lincoln, which represents a big moment for local families like the Thoenes. Full Story: https://southeast.newschannelnebraska.com/story/52917213/bdsra-conference-takes-center-stage-in-lincoln | News Channel Nebraska
3.1K views10 months ago
FacebookNews Channel Nebraska
As a bereaved Batten father, Chris Hawkins gives back to the Batten disease community by assisting with BDSRA’s virtual Grief Chats. Your donations to BDSRA make our virtual programming possible, providing much-needed support to both bereaved and actively caring families affected by Batten disease. Your support means families aren’t alone in battling this devastating disease. Join Chris in the fight for treatments and a cure for Batten disease: https://ow.ly/po8U50XIEiM Mail checks to: BDSRA Fou
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As a bereaved Batten father, Chris Hawkins gives back to the Batten disease community by assisting with BDSRA’s virtual Grief Chats. Your donations to BDSRA make our virtual programming possible, providing much-needed support to both bereaved and actively caring families affected by Batten disease. Your support means families aren’t alone in battling this devastating disease. Join Chris in the fight for treatments and a cure for Batten disease: https://ow.ly/po8U50XIEiM Mail checks to: BDSRA Fou
590 views4 months ago
FacebookBDSRA Foundation
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