Tonight the #BigLifeFix experts try to help 3-year-old Alana who has butterfly syndrome. | RTÉ One

This is the first documented successful treatment of a Epidermolysis Bullosa SMILE…this rare condition causes fragile blistering of the skin but in a dental office, virtually zero ability to open her mouth. Samm was an angel…stay tuned for her full story. #beauty #queen #makeover #wow #love #fyp #rare #smile #dentist #viral | Smile Again Dental - Texas

Epidermolysis bullosa . Epidermolysis bullosa (EB) is a very rare genetic skin condition and in worst cases can be fatal . Its diagnosed from birth by the neonatal team . This condition has 3 types and can vary from mild to severe. At present there is no cure of the condition and treatment is targeted to prevent complications . . In Pakistan there is lack of support for the children (and their parents ) with the condition .These children and their families need ongoing support with regards to tr